Raising and Educating a Deaf Child

International experts answer your questions about the choices, controversies, and decisions faced by the parents and educators of deaf and hard-of-hearing children.

Education

Is there any good research into the psychological impact on deaf children who are in mainstream education? I am a mature student and a parent of a deaf child in mainstream and am undertaking a research project into this topic with a view to eventually working with deaf children.

Question from D.Y., England. Posted May 7, 2014.
Response from Marc Marschark, NTID

This seems like an easy question but, as with many things in deaf education, the answer is a bit complex. There is an “older” (1980s-1990s, ancient!) literature from the United States indicating that deaf children in mainstream settings were more likely to report feeling lonely and isolated than those in schools and programs for deaf students. While that may still be true in some cases, the fact that the vast majority of deaf children in many countries are now in mainstream classrooms means that the dynamic now is rather different.

For reasons that are unclear, there is very little research on the social-emotional/psychological impact of mainstream education on deaf children conducted in North America (but see research by Shirin Antia and her colleagues). Most of the work in that area is being conducted in Europe, with some in the UK, Hong Kong, and other countries. The recent Teaching Deaf Learners conference in Amsterdam had a number of presentations on the topic, and you can identify/contact the authors by looking at the program. A book based on the conference (Educating Deaf Students: Creating a Global Evidence Base) is due from Oxford University Press, but not until 2015. It will include reviews of work on  various aspects of psychological functioning of deaf students in mainstream and special settings. In the meantime, an “advanced search” of the Journal of Deaf Studies and Deaf Education looking for “mainstream” in  “title or abstract” will yield a variety of relevant articles. You can reach the authors through the site.

Our son was born deaf and has cochlear implants. He is now 6 years old and in regular classroom with assistive devices. He seems to have a real trouble focusing and some issues with getting angry, upset, crying at times and arguing with adults. We are wondering if there are things we can do to help him gain better control of his emotions and get better focus.

Question from A.B., Oregon. Posted April 28, 2014.

It’s very important to remember that using assistive listening devices can be extremely stressful and tiring.  Cochlear implants have become very sophisticated and can be highly effective for many children and adults.  But, many children and adults still need to work quite hard to make sense of the auditory input they are receiving and process all that information.  School can be tiring, too.  So, one first step is to look at the times and situations that are most difficult for the youngster—the situations that bring up the most tears, anger, and arguing.  These may be times when he has been listening and working extra hard to hear and understand everything and everyone and is tired and worried that he hasn’t gotten it all.

Tracking the times and situations that are most difficult can also help teachers and parents to intervene before the child has reached that peak of frustration and can no longer regulate their emotions (leading to crying, arguing, and anger).  Once a child has “gone over the edge,” so to speak and is very upset, adults can mostly just help them gain control again.  That might mean getting away from the situation, waiting out the outburst, keeping them safe, etc.  But, if adults are able to recognize the warning signs, then intervening before control has been lost is possible.   Helping children learn to manage difficult times while they are still in control of their emotions can be done through conversations, modeling of appropriate behavior, offering alternative activities, and basic empathic statements.   And always remember to show children things they can DO when upset, as opposed to telling them what they should not do.  Not doing things is much harder than having an appropriate alternative.

How do I get public school to pay for an outside comprehensive evaluation for my 5 year old hard-of-hearing child. Her three-year IEP is coming up. The school does not have personnel trained on hearing loss to do the testing, but they argue that they have the right to do their own testing. Please advise.

Question from M.M., Massachussetts. Posted April 23, 2014.

In order for an appropriate IEP to be developed there must be evaluations conducted by the school district using licensed or approved staff. I would suggest that you put your request in writing and include that the fact that because the district does not employ staff trained to conduct such an evaluation for a child with a hearing loss an outside evaluation is needed.  Remember that your child is entitled to an Independent Evaluation (known as an IEE ) and the district must comply. Include in your request the particular evaluations that you wish to be conducted outside the district.

As for payment, there are different avenues for you to consider. First, you may, but are not required to, share the cost with the district. This option would mean that you would have to share financial information with the district. Second, if you are income eligible, the district will cover the full cost of having the evaluation conducted. Third, you can agree to pay for it yourself.

While it is hard to imagine how a three-year review could be conducted without this information, I would recommend that you make clear in your request that in order for your child’s services to be developed, evaluations must be conducted by qualified staff and, as it is a three-year review, the evaluations must produce the needed information to develop the new IEP.

Parent rights for IEEs are detailed in the federal special education law known as The Individuals with Disabilities Education Act, and those rights along with your state provides for parents can be accessed on the Department of Education’s web site in the state where you live. Finally, if the initial evaluation conducted on your child included an evaluation by an audiologist and your child uses assistive listening equipment, it is not likely that an appropriate IEP can be developed without having this type of evaluation being conducted as well.

I work with a CI student who is in 2nd grade. He received one implant at the age of 3 and now has two. He is unable to comprehend what he reads for the most part. I realize CI children have difficulty learning to read. My question is: What is your opinion about retention of CI students. This particular child is the youngest student in his grade with a birthday falling just at the deadline day for entering school. I feel he needs another year of language skills (academic and life vocabulary) so that he even has a chance of success. If he were not a CI student, I would recommend retention because of delays and his age.

Question from E.T., South Carolina. Posted April 21, 2014.

If the child needs to be held back, he needs to be held back. Whether or not he has a CI  should not change the educational decisions. At the same time, retaining a child and just giving him the same instruction is not going to solve the problem. I would recommend that first you make sure the implants are working and, second, that the child receives a full diagnostic reading assessment. My hunch is that he needs intensive and explicit phonics instruction but it depends on the results of the assessment.

I read in the New York Times that “all deaf children have some cognitive challenges.” Really?!

Question from S.W., New York. Posted April 15, 2014.

I was surprised to read the New York Times article A Son’s Deafness Prompts a Scientific Journey and learn that its author, Ms. Bouton, with whom I have never spoken, had written that I stated that “All deaf children have some cognitive challenges.” Not only have I never said that, there is no evidence to support such a claim.

When I do presentations about raising and educating deaf children for parents, teachers, and other audiences around the world, one of my clearly stated conclusions, based on the research evidence, is “differences do NOT equal deficiencies.”

Sadly, throughout history, many in our society have believed that individuals who are deaf are less intelligent than those who hear. The evidence simply does not support that perspective. To suggest that “all deaf children have some cognitive challenges” is not only incorrect, it is insensitive. And for Ms. Bouton to be unwilling to correct the record is simply wrong. [But note that a correction now has been posted at NYTimes.com.]

Can you please suggest some good articles, research or data to support having a TOD in a classroom with a 5 year old with significant delays “across the board” (the student has bilateral CIs, no sign language, extreme speech delays [apraxia?])?

Question from J.B., Vermont. Posted April 2, 2014.

Given the huge individual differences among deaf children with multiple challenges, this is an impossible question to answer. You really are (or should be) looking for information relevant to a very specific child, and we don’t have much to go on.  How significant are the delays?  Is the child using the CIs successfully?  What is the cause of the extreme speech delays? Has there been an assessment that suggests apraxia or is that a guess, and if the latter, based on what? Does the child not use sign language because s/he has not responded to it or because s/he has not been exposed to it?

You can find articles and chapters about the educational needs of deaf children with additional disabilities (see below), but you really want to know why that 5year-old should have a teacher of the deaf.  You will not get that from an article.  You are going to need a comprehensive evaluation done by people who know what they are doing and can communicate effectively with the child.  There is no one right answer; it depends on the needs of each child.

Further reading:

Mauk, G. W. & Mauk, P. P. (1998). Considerations, conceptualizations, and challenges in the study of concomitant learning disabilities among children and adolescents who are deaf or hard of hearing. Journal of Deaf Studies and Deaf Education, 3, 15-34.

Vreeland, J. (2014). Educating deaf children with multiple challenges.
www.raisingandeducatingdeafchildren.org

Is it appropriate to place sign dependent deaf students, who have “low” language and “low” IQ scores, but no other diagnosis, in special ed classes with non signing special ed teachers?

Question from L.L., Texas. Posted March 6, 2014.

It is never appropriate to place deaf students (or anyone else) in a classroom in which they cannot communicate with the teacher (or vice versa). Determination of an appropriate school placement for a deaf or hard-of-hearing child should be made on the basis of a thorough assessment by a school psychologist or other individual(s) who are qualified and able to communicate with the child. Specifics of the placement and the student’s needs to be made explicit in an IEP.

However, the fact that you are asking such a question suggests that there is more to this than it might appear.  If any particular student is “low language,” how do you know s/he is “sign dependent”? Is the student being described as low language because s/he does not use spoken language? Has the child been exposed to sign language from an early age but still is not acquiring it in an age-appropriate manner? Is the child from a family that uses some other language at home? Has a formal assessment of the sort suggested above actually been conducted? Ultimately, school placement should be a parental decision  (various states and countries vary in this respect), but it must be an informed one. Parents  in the United States have rights with regard to their children’s educational services (see Recommended Readings). Other “interested individuals” typically do not.

Recommended readings:

“Importance and Need for the Continuum of Educational Placements,” by Barbara Raimondo, Esq., coming April 1 to www.raisingandeducatingdeafchildren.org.

Raimondo, B. (2010). Legal advocacy for deaf and hard of hearing children in education.  In M. Marschark & P. Spencer (Eds.), The Oxford handbook of deaf studies, language, and education, volume 2 (pp. 31-40).  New York, NY: Oxford University Press.

Is there research to support why an additional year of preschool is considered appropriate for a child who is deaf and uses cochlear implants to develop language skills rather than moving on to kindergarten placement?

Question from A.H., Virginia. Posted March 4, 2014.

There does not appear to be any literature on this nor any general conclusions about what is or is not appropriate. It would definitely depend on the individual child and a full assessment of that child’s abilities.

The high school I work at as an educational sign language interpreter will soon be enrolling a young girl from a refugee camp. The student has a hearing loss, but it is not known to what degree. She has had no formal learning experiences except for a few years in the refugee camp she lived in. I would like some resources in order to help the student be as successful as possible. At this point, she will be mainstreamed because there is not a teacher of the deaf full time at this high school. Can you suggest some good resources to tap into in order to help this student with language acquisition?

Question from S.C., Colorado. Posted February 11, 2014.

This profile of a student arriving from a refugee camp, sadly, is not uncommon.

A principle that Dr. Gilbert Delgado established in his groundbreaking book The Hispanic Deaf, published in 1984, is that above all, each student has to be dealt with on a case-by-case basis. This seems like common sense, but unfortunately, we often hope that there are solutions that we can pull off the shelf or recommend for whole categories of students.

With that principle I mind, I can recommend the following:

Where is she coming from? Are there other refugees from the same refugee camp and country in the school district? What resources exist in the community for this group of refugees. People who are providing community support for the refugees should have more information that can be relevant. It is important to network.

How does the student communicate with her family and people in her environment?

If she is hard of hearing, does she speak? What language? What language does the family speak?

Does she use gestures and home signs?

The student’s hearing loss should be determined as soon as feasible.

If the student is hard of hearing, and high school age, hearing aids are not likely to be effective without one-to-one therapy.  This may be a goal a little further down the road.

Placing a student with a hearing loss in mainstreamed classes with an interpreter is not an appropriate placement. Unless she and the interpreter share a sign language, she has no access.

If she doesn’t know English, under Federal law, including Title IV of the Civil Rights Act, her language needs must be addressed. “ELL students must be provided with alternative services until they are proficient enough in English to participate meaningfully in the regular program.” https://www2.ed.gov/about/offices/list/ocr/qa-ell.html

Regarding resources for language acquisition, all students entering special education are required to have a full educational evaluation. These professionals should, after evaluating the student, provide goals for language and literacy development. Materials used should be at a basic level, and because she is an adolescent, not designed for very young children. If there are other hearing students in the district who also lack formal schooling, what has been done for them?  Does the district have ESOL specialists? What materials does the district have for teaching English to students new to the language?

These are very broad and general suggestions for a complex issue. Without more specific details, such as how the student communicates, family language, specifics about the school district, it is difficult to be specific. Finally, a sign language interpreter should not be responsible for language development of this student. I do not believe this satisfies Federal Law requirements for alternative services to assure acquisition of English.

I have a 5 year old son with mild to moderate, sensorineural bilateral hearing loss. He is currently in private school and his teacher identified him as needing an FM system. Who is responsible for providing/paying for the system – the public school, private school or parents? He does not have an IEP, only a 504 plan with the private school. Thanks for any guidance or information.

Question from M.R., New York. Posted January 16, 2014.

Given the fact that your five year old son does not have an IEP, the public school does not have any responsibility to provide equipment. A 504 plan includes  accommodations to the academic program. You may consider referring your son to the home district for an evaluation. If it is determined that his hearing loss is effecting his progress through the academic program, he would receive an IEP, and the school would be responsible for providing such equipment.

A word of caution, however: If the loss is minor and he is doing well in school it is unlikely he will be found to be eligible. As his teacher was the one who recommended an FM system, I would suggest you meet with the private school and investigate how they can provide it. I would also suggest if that fails if the home district could be approached about offering a loaner.