Raising and Educating a Deaf Child

International experts answer your questions about the choices, controversies, and decisions faced by the parents and educators of deaf and hard-of-hearing children.

School Placement

We are a small state with a generic inclusion policy for all students with a disability, which means that deaf students must attend their local school and are supported by itinerant ToD and/or interpreters. Our numbers are small and decentralised so most deaf children attend schools where they are the only deaf child. I would like to influence the Education Department policy to allow deaf children the choice of enrolling ‘out of area’ to be educated in a setting with other deaf and hard-of-hearing students, but I need some research evidence to present to the Department before they will consider this. Can anyone please help with some research supporting the need for deaf children to have access to deaf peers and role models for their linguistic, social and emotional development?

Question from M.R., Australia. Posted August 3, 2017.
Response from Marc Marschark - NTID

As much so we talk about the importance of “supporting the need for deaf children to have access to deaf peers and role models for their linguistic, social and emotional development,” the evidence is remarkably thin. What current evidence (as opposed to testimonials) there is comes primarily from co-enrollment programs, programs that include a critical mass of deaf students in inclusive classrooms that include both a general education teacher and a teacher of the deaf. You can find a description of co-enrollment and access couple of relevant articles through the Raising and Educating Deaf Children website. Two book chapters listed below specifically emphasize the benefits of being with a critical mass of deaf peers for linguistic and social-emotional development, respectively. At this point, however, we do not yet have much evidence to indicate strong effects of co-enrollment on academic achievement. More research is definitely needed.

Further reading:

Tang, G., Lam, S. & Yiu, K.-M. (2014). Language development of severe to profoundly deaf children studying in a sign bilingual and co-enrollment environment. In M. Marschark, G. Tang, & H. Knoors (Eds.), Bilingualism and bilingual deaf education (pp. 313–341). New York, NY: Oxford University Press.

Yiu, K.-M. & Tang, G. (2014). Social integration of deaf and hard-of-hearing children in a sign bilingual and co-enrollment environment. In M. Marschark, G. Tang, & H. Knoors (Eds.), Bilingualism and bilingual deaf education (pp. 342–367). New York, NY: Oxford University Press.

I am a state-wide consultant for schools and early intervention programs. The mother of a 1st grade student called me asking for help with the school who has recommended that her child repeat 1st grade in the fall, because she “just needs one more year for things to click” (the child has cytomegalovirus). She uses an interpreter in school and has bilateral cochlear implants. She is a bilingual child, but in a mainstream class and a school thathas no deaf education specialist or anyone with experience working with this population. So their expertise is limited and their recommendations often not appropriate for educating a deaf child who is bilingual.

I am looking for research on retention and the impact this has and why this decision may or may not be the best for this child. I would love to hear from any expert who can guide me to resources I can share with the family and the school.

Question from K.L., Arkansas. Posted July 27, 2017.

There is no research to support either grade retention or “social promotion” as a beneficial intervention for students who are performing below grade or age-equivalent standards. When talking about grade retention specifically, the evidence suggests that grade retention is more detrimental than helpful to students. Students who are retained tend to have poorer self-esteem than their peers. They are also less likely to graduate from high school. This holds true for students with and without disabilities. Apparently the only study that has involved deaf students showed that if they had ever been held back a year, they performed more poorly on achievement tests in reading and mathematics in high school.

When students are retained, they often experience a short-term boost in their academic achievement (perhaps because the material is now familiar), but that boost does not maintain throughout their school years. Instead of grade retention or social promotion, the National Association of School Psychologist (NASP) recommends implementing evidence-based, culturally-responsive instructional interventions that are directly linked to the student’s needs (find their parent information document here). The invention instruction should be paired with progress monitoring in order to adjust instruction as the student’s needs change. Carefully-planned intervention instruction based on the child’s needs is a more appropriate plan of action than grade retention. NASP advises that if the team and parents decide that grade retention is appropriate, then simply repeating the grade is not enough. The student must also be provided the intervention instruction mentioned previously.

I want my daughter to go to a school with a full program for students with hearing loss. My child’s school is recommending a closer program to home that only offers ASL. My daughter had to repeat 9th grade because I believe she didn’t have the necessary accommodations. Is a school that offers ASL adequate? The other school has a team of audiologists, speech pathologists, career coaches for students with hearing loss.

Question from I.L., California. Posted July 25, 2017.

There are two aspects to your question. First, with regard to language, you do not say whether your daughter has spoken language skills or relies exclusively on sign language. If she has spoken language skills, you want a program that supports those skills (with audiologists, speech pathologists, technology, etc.) as well as any sign language skills she might have. In that case, a school that offers only ASL is not adequate. Second, any deaf or hard-of-hearing student, regardless of their preferred/stronger language modality, will benefit from career coaches and other support/advising services. Both these services and the language-related services you want for your daughter can be built into her Individualized Education Program (IEP). Recent research shows that ending interventions and support services available in elementary school can create real challenges for deaf or hard-of-hearing students if they are ended too early. Many if not most such students will need and benefit from continued support into the high school years. More services are always better then fewer services!

I currently live in a state that does not have a listening and spoken language program for deaf children with cochlear implants. A bordering state has such a program. My county’s district will not allow my child to go there. Is there a law that they are in violation of? Do I have the right to have my child attend this LSL school?

Question from C.L., Indiana. Posted February 2, 2017.

It is difficult to give a definitive answer without having more information. However, the guiding principle for placement decisions is the IEP. So, if your child has an IEP that calls for the delivery of services that only an LSL School can provide, and the district does not have appropriate services that meet the needs as stated in the IEP, then the district would be required to find a placement that could provide those services.

As far as “rights” go, there is the right to compliance with the regulations on the part of the district. For example, if an evaluation is requested, the district is required to provide one in a timely fashion in order to be available for review at an IEP team meeting. If you feel that the evaluation and/or IEP recommendations are inappropriate, you have the right to reject the IEP. That is, the IEP process should determine the placement based on assessment data. You and your child have the right to that, but not to an alternative placement unless it can be demonstrated that what was being offered by the district does not meet the goals of the IEP. Parental wishes are considered but not binding.

p.s. The same standard would apply through any appeals process.

I have a son who is deaf…or so we thought. We had an ABR done recently, and he has no permanent hearing loss. Great news! I still feel that he has hearing issues. Small ear canals, frequent ear infections, but no permanent hearing losses. He also has oromotor issues that are congenital. He can’t drink, can’t eat more than purees, drools, right sided weakness, low tone, etc. He’s had 4 oral surgeries. It makes sense that he can’t talk. He did say his first word this summer, “Go!” So, I want him to learn ASL. He started at 30 signs 6 months ago, and now he has a vocabulary in excess of 250 signs.

We had an IEP meeting last week. brought 3 doctor reports and a speech therapist report that all indicate that he needs to be taught sign language in his classroom. The school “accepts” but will not teach ASL. They want him to use an iPad with pictures. I feel that all of his gains in speech are linked to his sign language acquisition.

I did reach out to the school for the deaf. We are signed up to do some of their outreach programs. He’s not deaf, so they won’t/can’t help us. I want my son in a Total Communication class. There is one about 20 minutes from our house.

How can we get what (we feel) our son needs?

Question from M.G., New York. Posted September 7, 2016.

If a finding of special needs is found (which clearly is the case) then the child is eligible for special education. At that point, it does not matter how the school “feels” about the recommendations, the school has to provide services based upon the assessments to provide access to the curriculum. Rejecting sign language because he is hearing is not an appropriate determination if the assessments indicate that as an adoption that will facilitate access to instruction and social interaction. This is a child with multiple needs and the recommendations that were cited do not come close to the extensive level of support the child will need to be able to be successful. Pull out services will not suffice at least not during his early childhood years and the need to intervene comprehensively to promote development is necessary.

So, first, the school should assess the child’s language level, both receptively and expressively. This is the starting point. Then goals should be developed based on the needs identified during the assessment. The overall goal should be achievement of age-level language skills. Age level skills will enable him to access the general education curriculum. The Individuals with Disabilities Education Act emphasizes age appropriate skills and access to the same educational material that other children receive, that is the general education curriculum. In other words, the school should be attempting to get the child’s skills to the same level of his peers so that he can participate in the classroom similar to his peers, to the extent possible. Will using an iPad with pictures do that? It’s hard to see how. The fact that you can show that he is succeeding using sign language is helpful.

Once goals are developed, then the services should be determined, such as teaching sign language by a trained teacher. After the services are agreed upon, then placement is made. The placement must be based on the child’s needs and services. If there is a total communication class that would fit the method used in the class, that would seem to be a more appropriate choice. If there is any capacity for spoken language, a simultaneous communication approach may be better in the long run.

Sounds simple, but I know when you are advocating for your child it is not easy. In the end, litigation may be the only way forward, with the experts lined up prepared to make recommendations based on their findings and to have the school system respond on how they will fulfill the requirements. Hopefully, it will not come to that. Meanwhile, a few tools you can use:

First, if you believe that the school has not done an appropriate assessment of his language skills you should request they do (or re-do) that right away. Also, are his goals consistent with getting him to the level of his peers (and helping him continue to progress)? They should be.

Second, as for placement, when a school refuses to change the placement of a child (or for other purposes), it must inform the parents of the reasons. This is called “Prior Written Notice.” See the form developed by the U.S. Department of Education at http://idea.ed.gov/download/modelform2_Prior_Written_Notice.pdf. As you can see, the school must explain the reasons why it refuses the placement, based on evaluation procedures, assessments, and records. You can request that the school provide the information required on this form.

Another law that applies in this case is the Americans with Disabilities Act (ADA). Among other things, that law requires schools to ensure that students with speech disabilities can receive information from, and convey information to, others. This communication must be as effective as communication with students without disabilities. The U.S. Department of Education has issued guidance on the ADA and effective communication at https://www.ada.gov/doe_doj_eff_comm/doe_doj_eff_comm_faqs.htm. Under the ADA schools must give “primary consideration” to the request of the student or parent.

My son was implanted at 2 years of age with a CI. He is now 3 years old. He was diagnosed with Auditory Neuropathy Spectrum Disorder and he is severely to profoundly deaf. They describe his disorder like a static radio most of the time it’s static but every once in a while he hears something but not enough to form speech or understand what a sound is. The CI was not a guarantee that it would work, but as my husband and I are both hearing and no one else in the family with hearing loss we figured we should give it a try. We have also been signing with him since he was 15 months old. Our son is now in school, and at his last IEP meeting we were told that they probably don’t have the funds for an interpreter or enough children to start a deaf class. I don’t know how to get my son the education he needs! I just don’t think it’s fair. He is very smart, very visual, and has an amazing memory. What can I do and how can I fight for my son’s education??

Question from C.D., Florida. Posted July 26, 2016.

You indicate that your son has auditory neuropathy and received a cochlear implant at age two. Some children with auditory neuropathy will benefit from cochlear implants, but most will need sign language for the very reason you described—auditory neuropathy produces static rather than a clear auditory signal, making it very difficult or impossible to access spoken language auditorily, even with a CI. It sounds like you have been doing everything right for your son by providing sign language since he was 15 months old.

I was sorry to hear that the school’s IEP team decided not to provide sign language for your son. Your son is entitled to a free appropriate public education (FAPE) under the Individuals with Disabilities Education Act (IDEA)—the federal law which governs every public school district in the U.S. For deaf students, the IDEA specifically states that communication needs, including the need for sign language, must be considered by the IEP team when making educational placement and services decisions. Furthermore, an IEP team may not use “lack of funds” as a reason not to provide interpreting or any other special services required for him to obtain FAPE.

The IDEA grants parents of children with documented special needs, including deafness, the right to appeal an IEP team decision. Every IEP team must, by law, provide parents with written procedures for appealing an IEP team decision. You should request the written procedures from your school district immediately and file an appeal according to the procedures described in that document.

In my experience, school districts often do not understand the communication needs of deaf children. However, you can and should advocate for your son through well-established legal procedures. In so doing, you will also be educating the school district – paving the way for future families with deafness—as well as for your son. I encourage you to be confident and persistent, because your son has the right to a free appropriate educational program, which in his case should include sign language.

My 10 year old daughter is fitted was fitted with a cochlear implant at the age of 3+. Overall, the CI has been beneficial to her. She has always attended a mainstream school with 3 sessions of speech therapy weekly. Academically, she has demonstrated strong potential – averaging decent scores in test and exams – with a lot of remedial teaching by her therapist and several hours of study with lesson teachers and self study (a lot of hard work…I wonder how she copes, but she is a strong child) The teachers in school have no special education training and haven’t been able to teach her in a way that enables her to be adequately imparted in class. As she approaches high school I am looking for high schools either in the UK or US that can accommodate her learning difference. So studying wouldn’t have to be so difficult. She is quite brilliant and it will be a shame for her not to be given the enabling environment to reach her full potential. Her only mode of communication is written and spoken language.

Question from Y.D., Nigeria. Posted August 18, 2015.

The answer to your question would be different in the United States and the United Kingdom.

If you are interested in your daughter attending a residential (“boarding”) school for the deaf in the U.S., and you are not a resident, state-supported schools for the deaf are not an option. There are several private residential schools for the deaf that your daughter could attend if she qualifies and you are willing to pay full fees. However, virtually all of those schools utilize sign language (to a greater or lesser extent) as well as spoken or written English. Aside from schools for the deaf, regular (“public”) schools in the U.S. are required to provide deaf children with appropriate accommodations. It’s a bit more complicated than that, but the generalization will suffice for the present purposes because the U.S. does not have public boarding schools.

If you are interested in your daughter attending a boarding school for the deaf in the United Kingdom, your daughter qualifies, and you are willing to pay the fees, there is at least one “oral” school for deaf students where your daughter would receive the necessary support services. Generally, however, private (fee-paying) boarding schools in the UK are not required to provide accommodations for deaf children. State-supported regular schools are required to do so, but it is unclear whether the relatively new, state boarding schools are similarly required to provide accommodations or are willing to accept deaf students. (The National Deaf Children’s Society has been working on this front.)You would need to seek them out through the State Boarding Schools’ Association.

Yet another possibility is homeschooling.

We have a 5 year old, bilaterally implanted son who has been mainstreamed into a general education kindergarten. He is awesome at reading people’s body language and just assuming answers to questions. He is an awesome parrot. [But these do not mean he is understanding fully.] The school continues to say that he is a typical 5-year-old boy and that he has adjusted well to being mainstreamed.

He is a very visual child, and we use sign language and spoken language to communicate at home, but the school says they cannot accommodate that, even though we know that there is an interpreter around the corner who has a contract with the school. Is there any way to get sign language into the classroom? We were originally told that if they got an interpreter for him they would need to get one for every foreign language student in the school. Which we know is against the law.

He went to the deaf school for half a day last year in Pre-K, and were told that that was all they could offer him, as he is so advanced due to us working so hard with him. But his working so hard has come back to bite us. He now comes home tired and burned out, not wanting to listen to us anymore. All we want is for him to get the same education as his hearing peers, please help!

Question from L.W., New York. Posted October 9, 2014.

You and your child are going through a difficult time that needs to be resolved as soon as possible. Your mentioning that he is in a mainstream setting suggests that he has had an evaluation through special education and has an Individualized Education Program (IEP). If he has, I would suggest requesting a meeting to review his current placement. If an evaluation was not done, you can request a referral for an evaluation through special education.

Your child is entitled to have access to the curriculum and to instruction in the classroom based upon the evaluation and the IEP (it is important that the assessment regarding modalities of instruction be done by someone knowledgeable with regard to hearing loss). If that access requires an interpreter, then it is the school department’s responsibility to provide that service, assuming that it is part of the IEP. There should be no negative consequences for your child because he has had opportunities (with your support) to develop his skills. The goal of special education is to insure that all children achieve to the greatest extent possible given their capabilities. Your son’s strong abilities are no less worthy of support than if he was weak in the same domains.

With regard to the school’s response to your request, not speaking English is not a disability. A child who is a native speaker of a language other than English does not qualify for special education services. That argument is a “red herring” and has nothing to do with your son’s situation.

Over the years I have had many hard of hearing students deny their hearing losses and refuse to wear any amplification. I usually tell students that amplification needs should be discussed with their parents. I generally support whatever the parent wants to do.

One of my students’ parent wants to develop a contract for hearing aid and FM use next school year for her seventh grader. The prospective seventh grader will not acknowledge the hearing loss or any of its impact. At this point, I am truly concerned for the student’s well-being. My inclination is to teach clarification and compensatory skills while working to help the student come to some acceptance of the hearing loss.

What does research say about acceptance of hearing loss or amplification use in adolescence?

Question from S.K., Ohio. Posted June 17, 2014.

Your question about available research is difficult to answer – after all these years, we still only have anecdotes to inform us, and not even enough of these to work with.  But we can take an educated guess at what this young person is thinking: “I have a problem but I want it to go away; all I want is be like everyone else so I will pretend I am.”

We do know quite a bit about acceptance in general, though: a mindset that first requires the hard work (and pain) of looking at a situation honestly.  This young person may need to work with a counselor to “get there.”  Additionally, while working on the strategies mentioned, perhaps you might ask her to chat about the concept of resilience.  It’s often more comfortable to talk less about the issue at hand (amplification decisions) and instead discuss a bigger but semi-related topic, as in: “People are talking a lot about resilience these days, have you noticed? When adversity occurs, how do people rebound? What strengths do people draw upon to recover and move forward? Any examples come to mind?” Just generally about “people,” but most of us insert ourselves into the answers.  All children need practice talking about their emotions. She is fortunate to have you in her life.

Is there any evidence-based research regarding consistency with interpreters in a mainstream setting? If a student has the same interpreter for a number of years, does this in itself, negatively impact a student’s progress if the student’s use of the accommodations and interpreter is a positive one? My daughter, who is in a mainstream setting, has requested the same interpreter for the 3rd year. I do not see any problem with this; however, I was unsuccessful in finding supportive/non-supportive research, articles, etc. about this issue.

Question from W.W., Florida. Posted June 8, 2014.

No one I have contacted has been able to cite research on this issue, so the simple answer to your question seems to be “no.” Stories shared over the years, though, have never yielded a negative about a deaf student having the same interpreter year after year….and even throughout the school years and into college. One male college student (still with his first, female, school interpreter) said that the early puberty years were a little strange at first, but he was glad he had not changed. High-quality educational interpreters are hard to find in many places. If your daughter has a good one and everyone is  happy, there is no reason to change. Having a variety of sign language models likely would be beneficial for her language development. However, it seems best to have consistency in school terminology and support from someone who knows your daughters strengths as well as her needs. You can find her other language models in other settings.

And here’s an addition of further readings from Christine Monikowski (NTID) who noted that many school districts have guidelines concerning time limits for interpreters working with a single student (typically 3 years)…to insure “professional boundaries” are adhered to:

Crosby, P. (1998, November/December). Looping in middle school: Why do it? Teaching Pre K-8, 29(3), 46-47.

Elliot, I. (1998, November/December). When two years are better than one. Teaching Pre K-8, 29(3), 38-41.

Nichols, J. D. (2002, September). The impact of looping and non-looping classroom environments on parental attitudes. Educational research quarterly, 26(1), 23-41