Mazique, Rachel (2025-2025). Normative Analysis of Stakeholder Perspectives on Eliminating Genes that Cause Deafness. Grant proposal submitted to The Greenwall Foundation Faculty Scholars Program in Bioethics, The Greenwall Foundation. ≠
Extending studies by Middleton et al. (2001) and Enns et al. (2010), this study would explore stakeholders’ viewpoints with a human rights approach to bioethics, with particular attention to disability bioethics and deaf bioethics, in order to guide policy and practice for biomedical professionals, researchers, medical geneticists and other clinicians through normative ethics (McCullough et al., 2004). Because consideration of disability and deaf bioethics is not dominant in current practices, this bioethical study is essential to public health policy on “the governance of human gene editing” (Conti, 2017, p. 18). Moreover, this normative analysis of bioethical perspectives from different stakeholder groups may directly impact future guidelines on genetic interventions for deafness.