Mazique
First Name
Rachel
Middle Initial
C
Last Name
Mazique
Department
Liberal Studies
Scholarship Year
2025
Research Center
Non-Center Based
Scholarship Type
Grants
Contributors List
Rachel Mazique
Project Title
Normative Analysis of Stakeholder Perspectives on Eliminating Genes that Cause Deafness
Start Date - Month
July
Start Date - Year
2025
End Date Anticipated - Month
September
End Date Anticipated - Year
2025
End Date Actual - Month
September
End Date Actual - Year
2025
Review Types
External Funding
Student Assistance
None
Projected Cost
$0.00
Funding Source
Operating Budget
Resulting Product
was RIT's sole selected applicant and submitted a Letter of Intent for review
Citation

Mazique, Rachel (2025-2025). Normative Analysis of Stakeholder Perspectives on Eliminating Genes that Cause Deafness. Grant proposal submitted to The Greenwall Foundation Faculty Scholars Program in Bioethics, The Greenwall Foundation. ≠

Abstract

Extending studies by Middleton et al. (2001) and Enns et al. (2010), this study would explore stakeholders’ viewpoints with a human rights approach to bioethics, with particular attention to disability bioethics and deaf bioethics, in order to guide policy and practice for biomedical professionals, researchers, medical geneticists and other clinicians through normative ethics (McCullough et al., 2004). Because consideration of disability and deaf bioethics is not dominant in current practices, this bioethical study is essential to public health policy on “the governance of human gene editing” (Conti, 2017, p. 18). Moreover, this normative analysis of bioethical perspectives from different stakeholder groups may directly impact future guidelines on genetic interventions for deafness.

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